A National Voice

There are a lot of things that are helpful and supportive of families of individuals with autism in our country…and then there are some things that aren’t.

For example, service models are very different from province to province.  Although it’s generally agreed that one approach to autism is not effective for everyone, it’s a lot easier in some places to find developmental therapists to help a child with autism.

Someone is trying to understand these differences and needs, so that we can address them at a national level.  The first step is a survey.  Can you help?  It’s important to make sure that everyone’s perspective is heard.

The Canadian Autism Spectrum Disorders Alliance has this to say:

Please help us #GetTo5000

Autism in Canada – National Needs Assessment Survey for Families, Adults with ASD and Professionals

NNASTake

The Canadian Autism Spectrum Disorders Alliance (CASDA) is a national coalition of autism related professionals, family members and community members. Together, we are working to secure the federal government’s commitment to the development of a National Autism Action Plan.

Thanks to funding from Public Health Agency Canada (PHAC), CASDA is conducting on-line National Needs Assessment Survey that will be used to gather data that will support our request to the government for a national autism action plan.

This on-line survey will canvas the opinions of thousands of Canadians, from all provinces and territories. The data gathered will identify existing services and service gaps, provide perspectives based on regional, individual, family and professional views and needs as well as help support surveillance initiatives.

The survey was developed primarily by Dr. Jonathan Weiss, a researcher from York University and CIHR Chair in Autism Spectrum Disorders Treatment and Care Research, in collaboration with Cynthia Carroll, Autism Nova Scotia. This research has been approved by the Ethics Review Board of York University.

From the data collected, CASDA will produce a report to assist with its planning process. CASDA will also share the data and report with PHAC to assist in the work they are doing to produce relevant information for Canadians on ASD.

We want everyone touched by Autism in Canada to have their voice heard. Together, we are in a position to influence public policy and planning. “One of the outcomes from this National Needs Assessment Survey, is the voice of Canadians affected by autism speaking directly to our governments and policy makers on the status of services and supports in Canada.”

Survey Quick Facts

  • We want 5000 Canadians to complete the survey in order to ensure we have a statistically representative sample size and rock solid data.
  • To be eligible to complete the survey you must be, an Individual with ASD, a Family member of individual with ASD, a Caregiver of individual with ASD, an Educator or a Professional who works in the ASD field.
  • The survey will be open from April 2nd to June 30th
  • The survey takes only 15 minutes to complete
  • The survey is available online at www.asdalliance.org
  • CASDA will use this information to write a report for the Public Health Agency of Canada, estimated report submission date is September, 2014.
  • While 1 in 88 people in Canada will be diagnosed with Autism, there are thousands more who live, work and care for them.  We need your help to make sure all of them have their voices heard.

Please spread the word and help us #GetTo5000. We are relying on our network of supporters to help us ensure that all Canadian’s eligible to participate:

  • Take the survey at www.ASDalliance.org
  • Like us on Facebook/ASDalliance
  • Follow us on Twitter/ASDalliance

 

For more information, contact

Please contact Margaret Whelan, CASDA Project Manager at 416-522-9180 or at info@asdalliance.org

Read more on the CASDA website here.

TAKE THE SURVEY

 

Update:

NEWS RELEASE

Autism National Needs Assessment Survey Responses Surpass Halfway Mark

In one month, over 2,600 surveys completed, but help needed from ALL provinces

[TORONTO – May 12, 2014]  On April 2, 2014, World Autism Awareness Day, the Canadian Autism Spectrum Disorders Alliance (CASDA) launched the first National Needs Assessment Survey for Autism in Canada. Today, CASDA is delighted to announce that, after one month, they have surpassed the halfway mark with over 2,600 responses from the Canadian Autism Spectrum Disorder (ASD) community.

This National Needs Assessment Survey is the first of its kind in Canada and is designed to canvas the opinions of thousands of Canadians, from all provinces and territories, with a goal of 5000 surveys completed. After analyzing the data to date, there has been an overwhelming response from ASD professionals and caregivers in Ontario but not yet enough representation from caregivers, professionals and those with ASD in other provinces. To ensure the data is statistically accurate and representative of the entire country, CASDA needs solid rates of response from all provinces.

“This survey marks an important opportunity for parents, individuals with ASD and professionals in the autism field to serve notice to our federal government that a national autism strategy is needed. Canadians with ASD deserve the attention of our government. They deserve to have policy and planning done using evidence from across the country and to have standards for service set at the national level,” said Cynthia Carroll, CASDA Chair.

While 1 in 68 people in Canada will be diagnosed with Autism, there are thousands more who live, work and care for them. The data gathered from this survey will identify existing services and service gaps, provide perspectives based on regional, individual, family and professional views and needs as well as help support surveillance initiatives.

Survey Quick Facts

·       CASDA needs 5000 Canadians to complete the survey in order to ensure a statistically representative sample size.
·       300 surveys completed by parents/caregivers of children with ASD are needed in each province.
·       To be eligible to complete the survey you must be, an Individual with ASD, a  Family member of an individual with ASD or a Caregiver of an individual with ASD.
·       Survey is open only until June 30th and takes just 15 minutes to complete
·       Survey is available online in English at http://bit.ly/1qkfMQy and in French http://bit.ly/1gHySe1
·       CASDA will use this information to write a report for the Public Health Agency of Canada, estimated publish date is October, 2014.
·       Join the conversation online using #GetTo5000

CASDA wants everyone touched by Autism in Canada to have their voice heard and together, the ASD community is in a position to influence public policy and planning in Canada.

CASDA
CASDA is a national coalition of autism related professionals, family members and community members and together, they are working to secure the federal government’s commitment to the development of a National Autism Action Plan.  The National Needs Assessment survey was developed by Dr. Jonathan Weiss, a researcher from York University and CIHR Chair in Autism Spectrum Disorders Treatment and Care Research, in consultation with Cynthia Carroll from Autism Nova Scotia. This research has been approved by the Ethics Review Board of York University. From the data collected, CASDA will produce a report to assist with its planning and advocacy process.

For more information, contact

Marg Whelan
Project Manager
info@asdalliance.org
416-522-9180